Well, I think it’s about time to share with you some interesting links that I’ve discovered lately .
To start with, here you have the link to a very interesting website. It describes all of the chemotherapy drugs – which are alphabetically ordered:
This web includes the results from a survey launched to worldwide patients of Ewing’s sarcoma, as well as other important data: http://www.ewingssarcomainfo.org/survey-results.html
European Reference Networks
The European Reference Networks is very good news for rare diseases‘ patients, among others Ewing’s sarcoma. Thanks to a virtual platform that has been launched recently, specialists could ask for advice about a diagnosis and check the results of medical trials from a network of more 900 highly specialized health centers from 25 countries in the EU and Norway. Have a look at this short video: http://europa.eu/!qK49bq
I wanted to outline this couple of success stories: the one from Pam Kusar and from Gabriele Grunewald. The commitment and determination of these athletes to overcome such a difficult situation are exemplary, bravo!
Save the date
Are you doing something on the evening of February 15th, 2018? Then you should save the date… More details in future posts… Mwhahahahaha! 🙂